To assess the status of the sexual education approach with spina bifida SB patients.. An online survey was sent to pediatric urologists from Latin countries, all contacted using email or mobile messaging software. Data was collected from January to January We received valid answers from participants practicing in seven different countries. Among these, Basic surgeon training urologist vs. Our study demonstrates that pediatric urologists are insufficiently addressing sexuality in SB patients.
Those who practise transitional urology show higher rates of approach to sexuality with SB patients, which suggests this is an important model of care.. The life expectancy of spina bifida patients SB has increased as a result of improved medical care. Therefore, adult life issues such as sexuality have become growing concerns among this population. Several studies reveal that most of these patients only receive sexual education from school or by parents, which seems not enough since SB is a complex condition that impacts their sexual and reproductive function.
Therefore, we decided to undertake an online survey among pediatric urologists to assess if there is a disconnect between what patients say they experience and what providers think they are doing. We also analyzed if there is correlation between different medical practices and the rates of sexual approach.
After both institutional review board approval, invitations were made using these societies mailing lists providing a weblink to a free-basis query Google Forms. It consisted of a non-open voluntary survey that requested individual registration with one personal email, preventing duplicate responses.
A informed consent was displayed in the invitation mail, with a full description of the study purpose, authors identification, the approximate length of 5 min to fulfill the survey and that data would be stored privately with authors. Data was collected from January to January with three invitation attempts during this period.
